Maximizing the Research Value of Completed Studies


Presented By: Steven Fiske, Director of Data Engineering, University of South Florida Health Informatics Institute

The University of South Florida Health Informatics Institute (HII) acts in a data coordinating center capacity for several epidemiological research projects ranging from clinical trials to large-scale observational studies. These projects include the Rare Disease Clinical Research Network (RDCRN), The Environmental Determinants of Diabetes in the Young (TEDDY), and Type I Diabetes TrialNet. Over the last year, the Institute has implemented and extended the LabKey Server platform to offer an unprecedented level of access to study data for the various stakeholders of its research projects. The implementation of the platform across these many and varied projects has required significant effort at multiple levels, technical and administrative. It has also had considerable impact on the ability of network investigators and clinical staff to make scientific insights and ensure sound management of their studies respectively. This presentation will cover the approaches taken, challenges encountered, and solutions developed throughout the implementation of the LabKey Server platform across three major, international, longitudinal, epidemiological studies managed at the USF Health Informatics Institute.