Providing Access to Aggregated Data without Compromising PHI

Presented By

Nola Klemfuss, Program Manager, Institute for Prostate Cancer Research (IPCR)

Abstract

Prostate cancer is the most common solid tumor and the second leading cause of cancer death among American men, yet there is still tremendous uncertainty about what is the most effective therapy. In addition, treatment side effects for prostate cancer patients can dramatically impact quality of life. As a result, we have designed the Mpower Prostate Cancer Registry in partnership with LabKey to capture statewide trends on prostate cancer patient experiences by asking questions about diagnosis, treatment and quality of life. This project will securely store private patient information with the ability to show aggregate trends for treatment decision making, research interventions, and advocacy.

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